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This policy statement aims to provide the PCP with general guidelines for the care of the child with congenital heart defects and outlines anticipated problems, serving as a repository of current knowledge in a practical, readily accessible format.A timeline approach is used, emphasizing the role of the PCP and medical home in the management of patients with CHD in their various life stages.The program values the importance of the screening of all healthy newborns for congenital heart disease.All babies with critical congenital heart disease are detected before leaving the newborn nursery.In the first 24 hours of life, a pulse oximetry (pulse ox) test can quickly and painlessly determine whether a baby has critical congenital heart disease and possibly save his or her life.Screening for more serious forms of CHD is now a part of the recommended uniform screening panel and supported by the Health and Human Services, American Heart Association, American College of Cardiology, American Academy of Pediatrics and March of Dimes.Frequent communication among all care providers is recommended.that may also affect the care of other children in the home.

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Previously unrecognized familial psychosocial stressors, racial and socioeconomic outcome disparities, other organ system involvement, complications of therapy, feeding challenges, neurodevelopmental concerns, and other special needs have been garnering more attention.Recommendations regarding newborn pulse oximetry or critical CHD (CCHD) screening and infection prevention strategies in children with CHD have been introduced or updated.Patients with CHD have complex health care needs that are to be provided for or coordinated for by their PCP.A representative from the AAP’s Family Partnership Network was requested to review this document.The role of the PCP and family engagement across the life span is emphasized.

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